The Patient Patient
We consider ourselves very lucky when it comes to Rumi’s diagnosis. She didn’t need any medical interventions when she was born, and she has no ongoing medical issues that we…
Tag: Parenting
Intermission is Over
And we’re back. Thanks for your patience while we packed up our lives and carted ourselves 2800 miles across the country. It’s been quite a journey. We’re mostly settled in…
Letting Go of the Safety Net
“Sometimes it’s necessary to go a long way out of the way in order to come back a short distance correctly.” – Edward Albee The Zoo Story We’re moving. To…
A Letter to My Daughter on World Down Syndrome Day
Dear Rumi, When I first learned that you were coming to be part of our family, I was so excited. I started to daydream about the little girl you would…
Our Story – Part 3: The Accidental Home Birth
“Stop the words now. Open the window in the center of your chest and let the spirits fly in and out.” – Rumi At about 2:00am on January 19th, 2016…
Our Story – Part 1: The Diagnosis
Early June of 2015. I was sitting in a cramped examination room holding Karyn’s hand while her doctor fiddled around with some piece of equipment, sliding and pushing it around…
Hold On Let Go 