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A dad trying to find balance in a family with an extra chromosome.

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Tag: Down Syndrome

Posted on July 7, 2024

I Did a Thing (Welcome Back!)

Yeah, yeah, yeah, I know. It’s been almost 5 years, and you feel like I abandoned you, but we’ve been a little busy. I’ll do a more in depth recap…

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Posted on November 20, 2019November 22, 2019

The Patient Patient

We consider ourselves very lucky when it comes to Rumi’s diagnosis. She didn’t need any medical interventions when she was born, and she has no ongoing medical issues that we…

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Posted on October 2, 2019October 2, 2019

National Everything Month

The days are getting shorter, the leaves are beginning to go crimson, and the shelves of the local Target are a mix of Halloween candy and Christmas decorations. It must…

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Posted on September 23, 2019September 23, 2019

How I Spent My Summer Vacation

“Life is what happens while you’re making other plans.” ~ John Lennon It seems like only yesterday that we were on the road, driving through the amber waves of grain,…

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Posted on June 19, 2019

Intermission is Over

And we’re back. Thanks for your patience while we packed up our lives and carted ourselves 2800 miles across the country. It’s been quite a journey. We’re mostly settled in…

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Posted on May 3, 2019May 3, 2019

Letting Go of the Manual

Oh man. It’s May already. In less than 20 days the moving truck will be here and we’ll be on our way to Pennsylvania. I don’t know if I’m ready…

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Posted on March 21, 2019March 21, 2019

A Letter to My Daughter on World Down Syndrome Day

Dear Rumi, When I first learned that you were coming to be part of our family, I was so excited. I started to daydream about the little girl you would…

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Posted on March 4, 2019

Our Story – Part 3: The Accidental Home Birth

“Stop the words now. Open the window in the center of your chest and let the spirits fly in and out.” – Rumi  At about 2:00am on January 19th, 2016…

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Recent Posts

  • I Did a Thing (Welcome Back!)
  • The Patient Patient
  • National Everything Month
  • How I Spent My Summer Vacation
  • Intermission is Over

Recent Comments

Michael Brownlee's avatarbrownlee312 on The Patient Patient
Tammi's avatarTammi on The Patient Patient
Lynette's avatarLynette on The Patient Patient
Marcy munnell's avatarMarcy munnell on The Patient Patient
Unknown's avatarNational Everything… on Our Story – Part 1: The…

Archives

  • July 2024
  • November 2019
  • October 2019
  • September 2019
  • June 2019
  • May 2019
  • April 2019
  • March 2019
  • February 2019

Categories

  • Family Story Time
  • Moving
  • Musings
  • Parenting
  • Uncategorized
  • Updates

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